Using Patient-Reported Outcomes to Include the Patient in Research, Care, and Quality

Using Patient-Reported Outcomes to Include the Patient in Research, Care, and Quality

Authors

  • Priya Gaur Avalere Health
  • Nikita Jeswani Avalere Health
  • Nelly Ganesan Avalere Health

DOI:

https://doi.org/10.7175/fe.v16i3.1203

Keywords:

Patient-Reported Outcomes, PRO translation, Patient-centered healthcare

References

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Terwee CB, Mokkink LB, Knol DL, et al. Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist. Qual Life Res 2012; 21: 651-7; http://dx.doi.org/10.1007/s11136-011-9960-1

Roseman D, Osborne-Stafnes J, Amy CH et al. Early Lessons from Four ‘Aligning Forces for Quality’ Communities Bolster the Case for Patient-Centered Care. Health Aff (Millwood) 2013; 32: 232-41; http://dx.doi.org/10.1377/hlthaff.2012.1085

Perfetto E, Burke L, Oehrlein E, et al. Systematic, methodologically sound actions taken to partner with patients in health care decision making, health research and development, and similar activities. Medical Care 2015; 53: 9-17

Parsons S, Winterbottom A, Cross P, et al. The quality of patient engagement and involvement in primary care. An inquiry into the quality of general practice in England. The King’s Fund 2010

National Institutes for Health. PROMIS Instrument Maturity Model. Approved 11, 2012

National Institutes for Health. PROMIS – Dynamic Tools to Measure Health Outcomes from the Patient Perspective. Available at: http://www.nihpromis.org/?AspxAutoDetectCookieSupport=1#1

Eton DT, Beebe TJ, Hagen PT, et al. Harmonizing and consolidating the measurement of patient-reported information at health care institutions: a position statement of the Mayo Clinic.. Patient Relat Outcome Meas 2014; 5: 7-15; http://dx.doi.org/10.2147/PROM.S55069

Deutsch A, Smith L, Gage B, et al. Patient-reported outcomes in performance measurement: commissioned paper on PRO-based performance measures for healthcare accountable entities. Available at: http://www.qualityforum.org/Projects/n-r/Patient-Reported_Outcomes/Patient-Reported_Outcomes.aspx#t=2&s=&p=2|

Coulter A. Patient Engagement – What Works? J Ambul Care Manage 2012; 35: 80-9; http://dx.doi.org/10.1097/JAC.0b013e318249e0fd

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Hall LK. HIT Policy and Standards Committee. Patient Generated Data Hearing. June 20, 2012.

Center for Patient and Family-Centered Care. HIMSS Patient Engagement Framework. 10 February 2014. Available at: http://www.himss.org/ResourceLibrary/genResourceDetailPDF.aspx?ItemNumber=28305

A Call to Action Health for Reform. AARP. Available at: http://assets.aarp.org/rgcenter/health/beyond_50_hcr.pdf

U.S. Food and Drug Administration. Guidance for Industry, Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims. Fed Regist 2009; 74: 65132-133. Available at: http://www.fda.gov/downloads/Drugs/Guidances/UCM193282.pdf

National Quality Forum. Patient Reported Outcomes (PROs) in Performance Measurement. January 2013. Available at: https://www.qualityforum.org/Publications/2012/12/Patient-Reported_Outcomes_in_Performance_Measurement.aspx

NQF. Prioritizing Gaps: Patient-Centered Care and Outcomes. Available at: http://www.qualityforum.org/projects/prioritizing_measures/person_centered_care/#t=1&s=&p=

Patient-Centered Outcomes Research Institute. Patient-Reported Outcomes (PRO) Infrastructure Workshop. November, 2013. http://www.pcori.org/events/patient-reported-outcomes-pro-infrastructure-workshop/

Downloads

Published

2015-09-30

How to Cite

Gaur, P., Jeswani, N., & Ganesan, N. (2015). Using Patient-Reported Outcomes to Include the Patient in Research, Care, and Quality. Farmeconomia. Health Economics and Therapeutic Pathways, 16(3), 57–59. https://doi.org/10.7175/fe.v16i3.1203

Issue

Section

Editorial

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